Ava Barry, who had Dravet Syndrome, passed away peacefully in hospital in Cork on Friday
The death has occurred of the teenage daughter of Cork woman, Vera Twomey, who fought a lengthy campaign before she gained access to medicinal cannabis for her beloved Ava who had a rare form of epilepsy which caused her to have daily catastrophic seizures.
Ms Twomey published a book called For Ava in 2019 in which she told of the struggles that her family experienced when her daughter was seriously ill. "Every waking moment was consumed by it. I operated under constant fear and tension waiting for the next seizure. It was coming though you never knew when -- but as sure as day it was coming.
Customs officials confiscated the THC cannabis oil from Ms Twomey after questioning her for an hour after she got off a flight from Barcelona. “It is freedom for us. We have a medicine that works. We can speak openly and honestly about Ava having the THC form of cannabis. We don’t have to hide in the shadows.Speaking in 2017 Ms Twomey admitted that she felt a personal responsibility to help other people in similar situations.
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